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Getting my body back

8/1/2021

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Although the list of side effects is long, it was a relief when the prednisolone dose was doubled and the pain finally let go. Having a body that functions again feels incredible. I am so thankful that the pain and stiffness could be fixed. In addition the high prednisolone dose gives an extra gear at times. Due to the paint in my chest I don't want / dare to run, but I can walk. So I walk. Every single day. The goal is an 1 hour, but if I can only manage 10 minutes, it's better than nothing. Today I got halfway to Løvlia on skis, next time I will get a little closer. Distance and time are really not that important, the most important thing is that I get out and move. The rheumatlogist has given the green light to move, as much as possible. 

​Equally gratifying is the fact that the hands have picked up the knitting again. No stiffness or poain, just fingers running the knitting needles. And while my fingers is making a new beanie appear, I am making plans.. 
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    A blog about beeing newly diagnosed with lupus. Dreaming of becoming a mum once the disease is under control.  I am  translating the blog to English so the posts will appear on this page as I go.   

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  • Lupus Life
  • Lupuslife (EN)
  • Om Frk Lupus
  • Systemic Lupus Erythematosus (SLE)